The Reality of Loss

This was posted by a friend whose father has ALS. I asked if I could repost it because I think it is a good read, even if it is hard. The songĀ is “HOME” by Chris Tomlin. The Reality of Loss When you care for someone you love who is suffering and terminally ill, you can […]

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August 1, 2017

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3 Years

3 years. 3 years ago on this date, April 8, 2014, I was told I have ALS. 3 years ago I was told that the average life expectancy for someone with ALS was 2-5 years. 3 years ago I could have given up hope for my life because I was going to die soon. Well, […]

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April 9, 2017


Birthday Musings (from March 6)

Today is my birthday. I am not one of those who note that day, it’s just another day on the calendar. That said, they are much more important as it is a tool to measure how the ALS is affecting my body. I’m what many call a slow progressor. What does that mean exactly? I […]

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March 9, 2017

I Am Tired

I am tired. I have very little energy because the ALS robs me of that precious commodity each and every day. I struggle to breathe doing everyday tasks like putting on my clothes and taking a shower. I am tired. Our country is so divided that people don't tolerate another's opinion. Just because I don't [...] Read More I Am Tired
March 9, 2017